Renowned Expert Speakers
18th Orphan Drugs & Rare Diseases Global Congress 2022 Americas
- Kelly Altman, Sr. Director, Medical Affairs, InformedDNA
- Alan J. Balch, Chief Executive Officer, Patient Advocate Foundation
- Tara J. Britt, Founder and President, Rare Disease Innovations Institute, Inc.
- Raquel Cabo, Vice President, Global Commercial Strategy, Ovid Therapeutics
- Ashley Cannon, Clinical Program Manager, Life Sciences, InformedDNA
- Kathleen Coolidge, Patient Advocacy, Pulse Infoframe
- Robert Donnell, Executive Vice President, Medicines Access, Smartway Pharma
- Wendy Erler, Head of Patient Experience and Insights, Alexion Pharmaceuticals, Inc.
- Jodie Sherman Gillon , SVP Corporate Affairs & Patient Advocacy, Peptilogics
- Jeremy Griffin, Executive Director, New York City Hemophilia Chapter
- Shane Hegarty, Chief Scientific Officer & Co-Founder, AXONIS Therapeutics, Inc.
- Eugean Jiwanmall, Sr Research Analyst, Independence Blue Cross
- John Lagus, Executive VP Business Development, Tanner Pharma Group
- Sanjeev Luther, President, CEO & Chairman of the Board, Cornerstone Pharmaceuticals
- Christof Marré, Principal, CMH Consulting, former VP Global Marketing, EMD Serono
- Jennifer McNary, Exec. Director, Head, Patient Advocacy & Engagement, Fulcrum Therapeutics
- Craig Martin, CEO, Global Genes, President, Rithm Health
- Neena Nizar, President & Founder, The Jansens Foundation
- May Orfali, EVP and Chief Medical Officer, Sigilon Therapeutics, Inc.
- Frank Rivera, Co-Founder/President, Stronger Than Sarcoidosis
- Johanna Rossell, Chief Commerical Officer, Enzyvan
- Paul Strijbos, Advanced Neurotechnology Innovation Leader, Roche
- Nicole Sweeny, Chief Commercial Officer, Praxis Precision Medicines
- Magali Taiel, M.D., Chief Medical Officer, GenSight-Biologics
- Simu Thomas, Vice President & Global Head HEOR, Alexion, AstraZeneca Rare Disease
- Tiina Urv, Program Director, Office of Rare Diseases Research, NCATS
- Rogerio Vivaldi MD, President, CEO, Sigilon Therapeutics Inc
- Christine Von Raesfeld, Founder & CEO, People with Empathy
- Monica L Weldon, President/CEO/Founder, SYNGAP1 Foundation