Orphan Drugs & Rare Diseases 2021
Sponsors & Exhibitors
Illingworth Research Group is a provider of patient-centric clinical research solutions. Services are tailored to clinical requirements but can include: mobile research nursing, patient concierge, and medical photography, for example. These services are operational in 45 countries and concentrate on taking the trail to the patient or making trial participation easier and more accessible to patients and their families.
Patient centricity is a vital part of our mission and has been so for 20 years. Our Research Nursing support focuses on bringing the trial to the patient in their home, school, or workplace. This can enhance both patient recruitment and retention. Our medical photography team offers an alternative approach by using imagery and video footage within the clinical trial. Imagery can be used in a range of applications concentrated within but not exclusive to dermatological trials.
Pulse Infoframe Inc (Pulse) believes thatcollaboration cures disease and Pulse enablessuch collaboration. A new style of healthcareinformatics company, Pulsebuilds and supports global, healthcareecosystems. It’s solution, healthie™, empowersconsortia of pharmaceutical and medical devicecompanies, researchers, clinicians, advocacygroups and patients, by aggregating informationfrom a variety of sources and then, delivering keyhealthcare insights – real time — derived fromthese data. For patients with rare diseases, Pulse’sglobal coverage is critical. Already great strideshave been made in characterizing rare diseasesusing Pulse’s global and national registries. Theseinsights help professionals to advance medicalresearch, focus clinical trial recruitment, assistadvocacy groups in their dealings with policymakers and provide real-world evidence. Please visit pulseinfoframe.com
Genomenon is a genomic health IT company that keeps pace with the constant advancements made in genomics and connects that research to patient DNA to help diagnose and treat patients with rare genetic diseases and cancer. Mastermind Genomic Landscapes inform pharmaceutical companies on precision medicine development, deliver genomic biomarkers for clinical trial target selection, and support CDx regulatory submissions with empirical evidence. Genomenon was named Company of the Year in Clinical Genomics Interpretation 2020 by Frost & Sullivan.